JKR Updates

Hi everyone, just wanted to let you all know that we are doing fine; no one in our household has any cold or flu symptoms at this point.  However, we are making an effort to self-isolate a little bit just to be on the safe side.  We have cancelled physical therapy appointments for this week, and are limiting visitors.  For those of you who have prepared meals for us in the past, thank you again!  But please take this opportunity now to focus on your own families for the time being.  We will be purchasing some frozen meals (perhaps even having the store deliver) and stocking our deep freeze. As of now, the workers are continuing construction on our house, but everyone is monitoring the situation and they have said that at some point they might need to stop for a while. I strongly suspect that Dr. Neel will be cancelling his talk on ALS 101 in April, or perhaps moving to an online format, but I will keep you updated as I hear more. Jane

The remodel of our house began last week, ironically on March "forth," which is what we are doing!  Demo seems to be progressing smoothly and steadily, but we are eager to see some construction.  Physical therapy for Kevin's shoulder has been providing some relief, both increasing range of motion and decreasing pain.  But he continues to experience quite a bit of fatigue during the day.  Also, we have noticed his speech is becoming slower and a bit more clumsy.  He will continue to voice bank as long as he can; the more phrases he can bank, the more authentic his synthesized voice will sound. Thanks again for prayers, meals, rides, etc.!  A special thank-you to our family members who gifted Kevin with a folding power wheelchair!  It arrived yesterday, and Kevin has already tested its off-road capabilities through the landscaping.  The kids think it is very cool, but the dog is not so sure. Thanks, also, to Aunt Suzanne for sharing her knowle...