JKR Updates

To clarify, I've never actually met this guy.  But I do know something of his journey with ALS, and his lovely wife Chisa and their two children, partly because he has been very active on Facebook and partly because his posts about their family's journey rings familiar to me.  His posts are sometimes hilarious, sometimes inspirational, and always honest.  Lately he hasn't been doing so good, and there's been a lot more talk of heaven.  The length of time between his updates has me worried.  Yesterday his wife posted that she thinks the end is near.  Is it weird that I'll miss him?  I find myself wondering, will Chisa be ok? This is Steve's YouTube channel.  Check out his gorgeous nature photography. https://www.youtube.com/channel/UCi9Gslv8YoOypEzXl8RRmzg/videos

Last week the governor of Ohio added ALS to the list of qualifying medical conditions, allowing Kevin to schedule his first vaccine for tomorrow!   We are relieved to see things moving forward, and eagerly await the day that we will all be protected. Kevin's speech is noticeably slower and more effortful.  I can still understand him most of the time during the day, but when he is tired (or frustrated, or laughing), he is very difficult to understand.  We are awaiting the arrival of an assistive communication device through Tobii Dynavox, but it will likely be May until it arrives.  Essentially, it is a tablet with built-in eye-gaze technology that will attach to his wheelchair and speak for him when he "clicks" on buttons by looking at them.  The software is customizable, so he will be able to create buttons with frequently used phrases, like "Let's have tacos," or "What's going on with our internet?" or, more recently, "I have an itch!...