JKR Updates

I hope you all had a wonderful Thanksgiving! I am blessed with family both immediate and extended that are loving and don't get on each other's nerves (so far as I know!). It's definitely easy to be grateful for my family. I know that's not always the case for everyone. But I'm in a season of my life where counting blessings has taken on more significance than it did in the past. So thank you for all of you and your continued thoughts and prayers.  December 3rd came and went without much fanfare. It was even a Tuesday just like in 2019 because of the two leap years. The anniversary of my diagnosis. It's been 5 years. The most common figures used for the average life expectancy from an ALS diagnosis is 2-5 years. There's some that have upped that to 3-6 years, but who's counting? As many of you know, on my last Tuesday December 3rd, I was told 9 months. Now I really loved the doctor who diagnosed me despite his rustiness in ALS prognosis. His demeanor alo...

I just can't get my act together and keep on top of this blog thing. I apologize! I'll be honest and say that I am feeling like I am having to slow down. Not that difficult for someone who cannot move right? Well, in pure Kevin fashion, I've spread myself too thin over the projects and correspondence that I have tried to juggle. So my absence (to those of you who don't see me regularly) is not as much a decline in health so much as a preservation of energy. So unlike conservation of energy in a closed system, my Lagrangian is NOT symmetric under continuous translations over time. I know right?! I'm not so sure it's even symmetric over space, which really messes with my momentum also. Don't worry. I'll spare the math and physics coolness of Emmy Noether. Along with the fun of pronouncing her last name if you're not familiar with her theorem.  ;) The ALS walk was so wonderful. I can't thank you enough for your thoughts, prayers, donations and showi...

 A message from Jennifer, Kevin's sister: Hello Kevin’s Crew! It’s that time of the year again! It’s time to dust off those Kevin’s Crew shirts and join us for the Walk to End ALS. This year’s walk will be on Sunday, September 22 at Winton Woods. check in is at 9:30 and walk time is 11:00 am. Winton Woods Park- Harper Meadows Area When:  Sunday Sept. 22, 2024 check in time: 9:30 AM Walk time: 11:00 AM  We hope that you will be able to join this year’s effort to raise awareness and support the fight!  The link below can be used to join our team AND it can be used to make a donation. Donations of any amount are appreciated and put to amazing use. These funds bless families with ALS in a multitude of ways they never anticipated they'd need. I know they have for us. Thank you so much for all the love and support you have given us! We greatly appreciate it! Love, Jen Click here to visit my personal page. If the text above does not appear as a clickable link, you can ...

I like to space these things out so I don't overwhelm your inboxes. Or maybe I just space out, and these blog entries just take that long to reach earth. Like the light from galaxies in the telescopes. Or more like an extraordinarily low frequency pulsar, if that exists. Anyway, I'm going to try and remedy that. I do have a lot to catch you all up on, both projects-wise and thoughts-wise.  So this may be a short post, but I wanted to share some wonderful news I learned from my neurologist. Now don't get too excited, I still have ALS for now, but the news isn't about me. It turns out that Dr Neel, Director of the UC ALS Clinic, received a 13.5 million dollar donation to help him build out services and do research locally. It was kept very secret until the announcement in late April. Prior to this, during a clinic visit in February or March, he asked me and Jane if we would mind if a journalist and photographer could take photographs and video of us during the appointment...

A few months ago, we shared some information about one of the research projects that Kevin is working on and our trip to the Shirley Ryan Ability Lab in Chicago.  Recently we discovered a video showing footage of our visit and describing the goals of the project.  It is well done.  Enjoy!  😁