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Showing posts from April, 2020

Bathroom is functional

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Our remodel of the bathroom is almost complete!  We are now able to use all the "important" features, just waiting on the cabinetry to come in, and the barn doors for the adjoining room.  In the meantime, no workers in our house for a while means that Kaleb can have his morning Zoom meeting with his classmates without the sounds of hammering and drilling in the background. Thanks to Kyle, Steve, and Terry for building our ramp out the garage door this morning!  It is exactly what we needed and looks fantastic!

Help with hospital bed?

We are in need of 2-3 nearby men to help unload the hospital bed from Tim's truck into our garage on Thursday afternoon (April 9), around 4 or 4:30.  Let me know if you can help by calling me at home: 755-0625.  Thanks in advance! -Jane

Day by day

The remodel of our bathroom continues.  Destruction is over and drywall went up last week.  This week the walls were painted and they have begun the tilework.  We will all be "relieved" (ahem) to have a toilet on the main level again. Yesterday we were able to have a telephone conference with Dr. Neel about some new issues and symptoms that Kevin is experiencing.  Even though we never did get the video portion of the call to work, it was comforting just to be able to relay our concerns and get his feedback.  He is prescribing an additional medicine, one that will hopefully slow down the degeneration of Kevin's swallowing ability and also help alleviate pseudobulbar affect (increased laughter/crying), which is common with ALS patients.  Kevin has made the decision to discontinue the voice banking; he has a significant number of phrases already with which to "build a voice" and the task is becoming more effortful. Earlier this week we were very blessed to...