Clinic day!

We had "clinic day," a couple weeks ago.  This is like four or five appointments all bunched together in one day.  We saw a physical therapist, occupational therapist, respiratory therapist, speech therapist, and of course Dr. Neel.  The main things that came out of the visit were a plan to move ahead with a device to help Kevin communicate, and an adjustment to medications that have alleviated some of his pseudobulbar affect (discussed in the last post) and...TA-DAH...sleep better!  Which led to this conversation at the pharmacy later that same day:

Pharmacist: Has he ever had this medication before?
Me: No
Pharmacist: It might make him drowsy.
Me: That would be so awesome.
Pharmacist: And it starts working in 15 minutes.
Me: I could totally kiss you.

Actually, I didn't say that last part.  I was in the Walmart drive-thru and it would have been unfeasible, anyway.  But I think the clouds did part for a moment and maybe a rainbow appeared.

In other news, we recently acquired some new equipment (thanks to those who contributed financially--you know who you are), and until it was all unboxed, assembled, and put in place our family room looked a bit like a warehouse.  Some of the items were:

• a laptop table on wheels for Kevin to use wherever he decides to park his wheelchair
• a "selfie light" that lights up his face in order for his HeadMouse Pi to work (or for TikTok videos if he feels so inclined)
• a machine called a "cough assist," which isn't nearly as fun as a laptop table and a selfie light, but may be just as useful someday
• a rolling cart to hold the cough assist and the humidifier and anything else we may need to move from room to room
• a Hoyer lift to transfer Kevin from bed to wheelchair, etc., when standing transfers become too difficult.  Kevin doesn't need this yet, but we're thinking ahead...

That's all for now.  Thanks again for the meals, rides, prayers, words of kindness and support.